This is the story of a precious baby girl who is predicted to be alive and experiencing life with her amazing family for another 13 months. "Don't forget to share my story with everyone you know!  But make sure when you tell people about me, you tell them I'm not dying, I'm living...and they should be too!" Those are the words spoken on behalf of Avery Canahuati by her parents. Parents who are gracefully fighting to educate the world about SMA.

Avery Canahuati
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Sweet, beautiful Avery is 5 1/2 months old and she is living with SMA (Spinal Muscular Atrophy). SMA is an incurable disease:

Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers. --Families of SMA

Due to SMA Avery has poor muscle control and may eventually lose her ability to breathe.

From reading Avery's blog I realize that she is surrounded by AWESOME people. Yes, I cried.  It breaks my heart that this family is faced with this unimaginable circumstance. It leaves me at a loss for words. I realize the best thing I could do for them is spread their story. So please take a few moments and visit the Canahuati family's blogspot. I promise you will, as I did, become immersed in their photos, their story,  and their amazing journey. Once you read this story, please share it--for Avery.

 

 

 

Let's show this family some support. Let's shower them with love. Below you will find Avery's mailing address. If you can, please send a card, a note, a photo of you, your family, or anything that you think could bring a little tiny piece of joy to them during this time of hardship. Spread their message. Also, if you take the time to read Avery's blog you will see a video on the second page of her favorite talk show, "Ellen". Avery loves to watch Ellen and the crowd as they dance. Avery's mom and dad are asking that everyone go to Ellen's website today and send Ellen a note about Avery. Hopefully little Avery will fulfill another item on her bucket list with our help. And think of how many more lives this family will touch with our help! They've even included instructions and a story that you can paste directly onto Ellen's website---makes it super easy to help even if you are rushed.

 

 

If there's anything you'd like to mail Avery, you can send it to:

Avery's Bucket List
PO BOX #2849
Bellaire, TX 77402

All monetary contributions will be used towards continued SMA awareness and the further advancement of research to find a cure for SMA. If you feel more comfortable making monetary donations directly to a registered non-profit organization, the Canahuati family strongly encourages you to please do so in Avery's name to the following organization:

Fight SMA (www.fightsma.org)

If you donate directly to Fight SMA please let the Canahuati family know so they can keep track of reaching Avery's bucket list goal of raising at least $1,000,000 towards a cure for SMA.

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